Investigating health-related quality of life in rare diseases: a case study in utility value determi...
Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)
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Publisher
England: BioMed Central Ltd
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Language
English
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Publisher
England: BioMed Central Ltd
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Utility studies enable preference-based quantification of a disease's impact on patients' health-related quality of life (HRQoL). It is often difficult to obtain utility values for rare, neurodegenerative conditions due to cognitive burden of direct elicitation methods, and the limited size of patient/caregiver populations. CLN2 disease (neuronal c...
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Full title
Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)
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TN_cdi_doaj_primary_oai_doaj_org_article_05ce73df0f3c470db18d58551b88cab3
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https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_05ce73df0f3c470db18d58551b88cab3
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ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-021-01829-x
