Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-ba...
Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-based expert consensus on collectable data
About this item
Full title
Author / Creator
Slioui, Abderhmane , Tammam, Giulia , Vanoli, Fiammetta , Marina, Adela Della , Vohanka, Stanislav , Gilhus, Nils Erik , Moroni, Isabella , Leite, Maria Isabel , Piehl, Fredrik , Antozzi, Carlo , Pini, Jonathan , Stascheit, Frauke , Attarian, Shahram , Santos, Ernestina , Verschuuren, Jan , Canonge, Lou , Garcia, Jeremy , Perriard, Caroline , Cortés-Vicente, Elena , Mantegazza, Renato , Meisel, Andreas and Sacconi, Sabrina
Publisher
England: BioMed Central Ltd
Journal title
Language
English
Formats
Publication information
Publisher
England: BioMed Central Ltd
Subjects
More information
Scope and Contents
Contents
Myasthenia gravis (MG) is a rare autoimmune disorder. Several new treatment concepts have emerged in recent years, but access to these treatments varies due to differing national reimbursement regulations, leading to disparities across Europe. This highlights the need for high-quality data collection by stakeholders to establish MG registries. A Eu...
Alternative Titles
Full title
Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-based expert consensus on collectable data
Authors, Artists and Contributors
Author / Creator
Tammam, Giulia
Vanoli, Fiammetta
Marina, Adela Della
Vohanka, Stanislav
Gilhus, Nils Erik
Moroni, Isabella
Leite, Maria Isabel
Piehl, Fredrik
Antozzi, Carlo
Pini, Jonathan
Stascheit, Frauke
Attarian, Shahram
Santos, Ernestina
Verschuuren, Jan
Canonge, Lou
Garcia, Jeremy
Perriard, Caroline
Cortés-Vicente, Elena
Mantegazza, Renato
Meisel, Andreas
Sacconi, Sabrina
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_1e6971cfdb474a4bb17dc82d4b76c458
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_1e6971cfdb474a4bb17dc82d4b76c458
Other Identifiers
ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-024-03520-3
