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A COSMIN systematic review of instruments for evaluating health-related quality of life in people wi...

A COSMIN systematic review of instruments for evaluating health-related quality of life in people wi...

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_20710382954a4ad7928aac1548428ec3

A COSMIN systematic review of instruments for evaluating health-related quality of life in people with Hereditary Angioedema

About this item

Full title

A COSMIN systematic review of instruments for evaluating health-related quality of life in people with Hereditary Angioedema

Publisher

England: BioMed Central Ltd

Journal title

Health and quality of life outcomes, 2025-02, Vol.23 (1), p.12-15

Language

English

Formats

Publication information

Publisher

England: BioMed Central Ltd

More information

Scope and Contents

Contents

Hereditary angioedema (HAE) adversely affects health-related quality of life (HRQoL). HAE often compromises the HRQoL due to the impact on functional capacity caused by edema, pain, other symptoms, and psychosocial factors. Patient-Reported Outcome Measures (PROMs) focus on HRQoL and are crucial tools for evaluating the burden of the disease and ch...

Alternative Titles

Full title

A COSMIN systematic review of instruments for evaluating health-related quality of life in people with Hereditary Angioedema

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_doaj_primary_oai_doaj_org_article_20710382954a4ad7928aac1548428ec3

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_20710382954a4ad7928aac1548428ec3

Other Identifiers

ISSN

1477-7525

E-ISSN

1477-7525

DOI

10.1186/s12955-025-02342-6

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