Participation in a national diagnostic research study: assessing the patient experience
Participation in a national diagnostic research study: assessing the patient experience
About this item
Full title
Author / Creator
Rosenfeld, Lindsay E. , LeBlanc, Kimberly , Nagy, Anna , Ego, Braeden K. , Acosta, Maria T. , Adam, Margaret , Adams, David R. , Alvarez, Raquel L. , Alvey, Justin , Amendola, Laura , Andrews, Ashley , Ashley, Euan A. , Bacino, Carlos A. , Bademci, Guney , Balasubramanyam, Ashok , Baldridge, Dustin , Bale, Jim , Bamshad, Michael , Barbouth, Deborah , Bayrak-Toydemir, Pinar , Beck, Anita , Beggs, Alan H. , Behrens, Edward , Bejerano, Gill , Bellen, Hugo J. , Bennett, Jimmy , Berg-Rood, Beverly , Bernstein, Jonathan A. , Berry, Gerard T. , Bican, Anna , Bivona, Stephanie , Blue, Elizabeth , Bohnsack, John , Bonner, Devon , Botto, Lorenzo , Boyd, Brenna , Briere, Lauren C. , Brokamp, Elly , Brown, Gabrielle , Burke, Elizabeth A. , Burrage, Lindsay C. , Butte, Manish J. , Byers, Peter , Byrd, William E. , Carey, John , Carrasquillo, Olveen , Cassini, Thomas , Chang, Ta Chen Peter , Chanprasert, Sirisak , Chao, Hsiao-Tuan , Clark, Gary D. , Coakley, Terra R. , Cobban, Laurel A. , Cogan, Joy D. , Coggins, Matthew , Cole, F. Sessions , Colley, Heather A. , Cooper, Cynthia M. , Cope, Heidi , Corona, Rosario , Craigen, William J. , Crouse, Andrew B. , Cunningham, Michael , D’Souza, Precilla , Dai, Hongzheng , Dasari, Surendra , Davis, Joie , Dayal, Jyoti G. , Dell’Angelica, Esteban C. , Dipple, Katrina , Doherty, Daniel , Dorrani, Naghmeh , Doss, Argenia L. , Douine, Emilie D. , Duncan, Laura , Earl, Dawn , Eckstein, David J. , Emrick, Lisa T. , Eng, Christine M. , Falk, Marni , Fieg, Elizabeth L. , Fisher, Paul G. , Fogel, Brent L. , Forghani, Irman , Gahl, William A. , Glass, Ian , Gochuico, Bernadette , Goddard, Page C. , Godfrey, Rena A. , Golden-Grant, Katie , Grajewski, Alana , Hadley, Don , Hahn, Sihoun , Halley, Meghan C. , Hamid, Rizwan , Hassey, Kelly , Hayes, Nichole , High, Frances , Hing, Anne , Hisama, Fuki M. , The Undiagnosed Diseases Network and Undiagnosed Diseases Network
Publisher
England: BioMed Central Ltd
Journal title
Language
English
Formats
Publication information
Publisher
England: BioMed Central Ltd
Subjects
More information
Scope and Contents
Contents
The Undiagnosed Diseases Network (UDN), a clinical research study funded by the National Institutes of Health, aims to provide answers for patients with undiagnosed conditions and generate knowledge about underlying disease mechanisms. UDN evaluations involve collaboration between clinicians and researchers and go beyond what is possible in clinica...
Alternative Titles
Full title
Participation in a national diagnostic research study: assessing the patient experience
Authors, Artists and Contributors
Author / Creator
LeBlanc, Kimberly
Nagy, Anna
Ego, Braeden K.
Acosta, Maria T.
Adam, Margaret
Adams, David R.
Alvarez, Raquel L.
Alvey, Justin
Amendola, Laura
Andrews, Ashley
Ashley, Euan A.
Bacino, Carlos A.
Bademci, Guney
Balasubramanyam, Ashok
Baldridge, Dustin
Bale, Jim
Bamshad, Michael
Barbouth, Deborah
Bayrak-Toydemir, Pinar
Beck, Anita
Beggs, Alan H.
Behrens, Edward
Bejerano, Gill
Bellen, Hugo J.
Bennett, Jimmy
Berg-Rood, Beverly
Bernstein, Jonathan A.
Berry, Gerard T.
Bican, Anna
Bivona, Stephanie
Blue, Elizabeth
Bohnsack, John
Bonner, Devon
Botto, Lorenzo
Boyd, Brenna
Briere, Lauren C.
Brokamp, Elly
Brown, Gabrielle
Burke, Elizabeth A.
Burrage, Lindsay C.
Butte, Manish J.
Byers, Peter
Byrd, William E.
Carey, John
Carrasquillo, Olveen
Cassini, Thomas
Chang, Ta Chen Peter
Chanprasert, Sirisak
Chao, Hsiao-Tuan
Clark, Gary D.
Coakley, Terra R.
Cobban, Laurel A.
Cogan, Joy D.
Coggins, Matthew
Cole, F. Sessions
Colley, Heather A.
Cooper, Cynthia M.
Cope, Heidi
Corona, Rosario
Craigen, William J.
Crouse, Andrew B.
Cunningham, Michael
D’Souza, Precilla
Dai, Hongzheng
Dasari, Surendra
Davis, Joie
Dayal, Jyoti G.
Dell’Angelica, Esteban C.
Dipple, Katrina
Doherty, Daniel
Dorrani, Naghmeh
Doss, Argenia L.
Douine, Emilie D.
Duncan, Laura
Earl, Dawn
Eckstein, David J.
Emrick, Lisa T.
Eng, Christine M.
Falk, Marni
Fieg, Elizabeth L.
Fisher, Paul G.
Fogel, Brent L.
Forghani, Irman
Gahl, William A.
Glass, Ian
Gochuico, Bernadette
Goddard, Page C.
Godfrey, Rena A.
Golden-Grant, Katie
Grajewski, Alana
Hadley, Don
Hahn, Sihoun
Halley, Meghan C.
Hamid, Rizwan
Hassey, Kelly
Hayes, Nichole
High, Frances
Hing, Anne
Hisama, Fuki M.
The Undiagnosed Diseases Network
Undiagnosed Diseases Network
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_2beb68c62f8c40ecbfec7bc48e0dc378
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_2beb68c62f8c40ecbfec7bc48e0dc378
Other Identifiers
ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-023-02695-5
