Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa
Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa
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Publisher
England: BioMed Central Ltd
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Language
English
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Publisher
England: BioMed Central Ltd
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Scope and Contents
Contents
Epidermolysis bullosa (EB) comprises inherited mechanobullous dermatoses with considerable morbidity and mortality. While current treatments are symptomatic, a growing number of innovative therapeutic compounds are evaluated in clinical trials. Clinical research in rare diseases like EB, however, faces many challenges, including sample size require...
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Full title
Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa
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TN_cdi_doaj_primary_oai_doaj_org_article_4e03d976832844bb9a64cd15d0f5352d
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_4e03d976832844bb9a64cd15d0f5352d
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ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-020-01443-3
