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Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_7546aeb03b9a4890a5294cab68ad86cd

Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

About this item

Full title

Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

Publisher

Cham: Springer International Publishing

Journal title

Journal of patient-reported outcomes, 2021-01, Vol.5 (1), p.3-3, Article 3

Language

English

Formats

Publication information

Publisher

Cham: Springer International Publishing

More information

Scope and Contents

Contents

Background
Hereditary transthyretin (hATTR) amyloidosis is a rare, systemic, progressive, and life-threatening disease in which transthyretin proteins misfold and aggregate as insoluble amyloid deposits, disrupting nervous, cardiac, gastrointestinal, and other organ tissues. There are limited available data about the experience of patients livin...

Alternative Titles

Full title

Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_doaj_primary_oai_doaj_org_article_7546aeb03b9a4890a5294cab68ad86cd

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_7546aeb03b9a4890a5294cab68ad86cd

Other Identifiers

ISSN

2509-8020

E-ISSN

2509-8020

DOI

10.1186/s41687-020-00273-y

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