Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal...
Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study
About this item
Full title
Author / Creator
Vázquez-Costa, Juan F. , Branas-Pampillón, María , Medina-Cantillo, Julita , Povedano, Mónica , Pitarch-Castellano, Inmaculada , López-Lobato, Mercedes , Fernández-Ramos, Joaquín A. , Lafuente-Hidalgo, Miguel , Rojas-García, Ricard , Caballero-Caballero, José M. , Málaga, Ignacio , Eirís-Puñal, Jesús , De Lemus, Mencía , Cattinari, María G. , Cabello-Moruno, Rosana , Díaz-Abós, Paola , Sánchez-Menéndez, Victoria , Rebollo, Pablo , Maurino, Jorge and Madruga-Garrido, Marcos
Publisher
Cheshire: Springer Healthcare
Journal title
Language
English
Formats
Publication information
Publisher
Cheshire: Springer Healthcare
Subjects
More information
Scope and Contents
Contents
Introduction
Outcome measures traditionally used in spinal muscular atrophy (SMA) clinical trials are inadequate to assess the full range of disease severity. The aim of this study was to assess the psychometric properties of a set of existing questionnaires and new items, gathering information on the impact of SMA from the patient and caregiver...
Alternative Titles
Full title
Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study
Authors, Artists and Contributors
Author / Creator
Branas-Pampillón, María
Medina-Cantillo, Julita
Povedano, Mónica
Pitarch-Castellano, Inmaculada
López-Lobato, Mercedes
Fernández-Ramos, Joaquín A.
Lafuente-Hidalgo, Miguel
Rojas-García, Ricard
Caballero-Caballero, José M.
Málaga, Ignacio
Eirís-Puñal, Jesús
De Lemus, Mencía
Cattinari, María G.
Cabello-Moruno, Rosana
Díaz-Abós, Paola
Sánchez-Menéndez, Victoria
Rebollo, Pablo
Maurino, Jorge
Madruga-Garrido, Marcos
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_9bfcddc000ee4147b49cc5667317fe56
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_9bfcddc000ee4147b49cc5667317fe56
Other Identifiers
ISSN
2193-8253
E-ISSN
2193-6536
DOI
10.1007/s40120-022-00411-2
