Single German centre experience with patient journey and care-relevant needs in amyloidosis: The Ger...
Single German centre experience with patient journey and care-relevant needs in amyloidosis: The German AMY-NEEDS research and care program
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Publisher
United States: Public Library of Science
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Language
English
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Publisher
United States: Public Library of Science
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Contents
Amyloidosis is a rare multi-system disorder associated with frequently delayed diagnosis, enormous disease burden and psychosocial distress.
Systematic assessment of needs was performed by a subtype-spanning questionnaire-based survey within the AMY-NEEDS research and care program.
118 patients with proven amyloidosis (62.7% ATTR, 22.0% AL, 1...
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Full title
Single German centre experience with patient journey and care-relevant needs in amyloidosis: The German AMY-NEEDS research and care program
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TN_cdi_doaj_primary_oai_doaj_org_article_b8028af14da94d4b86b9bf3cebf92cc0
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_b8028af14da94d4b86b9bf3cebf92cc0
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ISSN
1932-6203
E-ISSN
1932-6203
DOI
10.1371/journal.pone.0297182
