Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospectiv...
Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospective, Cross-Sectional, Multi-Center Analysis
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Author / Creator
Wohnrade, Camilla , Velling, Ann-Kathrin , Mix, Lucas , Wurster, Claudia D. , Cordts, Isabell , Stolte, Benjamin , Zeller, Daniel , Uzelac, Zeljko , Platen, Sophia , Hagenacker, Tim , Deschauer, Marcus , Lingor, Paul , Ludolph, Albert C. , Lulé, Dorothée , Petri, Susanne , Osmanovic, Alma and Schreiber-Katz, Olivia
Publisher
Switzerland: MDPI AG
Journal title
Language
English
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Publisher
Switzerland: MDPI AG
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Scope and Contents
Contents
Spinal muscular atrophy (SMA) is a disabling disease that affects not only the patient’s health-related quality of life (HRQoL), but also causes a high caregiver burden (CGB). The aim of this study was to evaluate HRQoL, CGB, and their predictors in SMA. In two prospective, cross-sectional, and multi-center studies, SMA patients (n = 39) and SMA pa...
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Full title
Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospective, Cross-Sectional, Multi-Center Analysis
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Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_cc311f29a80d47f6a6ec373d547d5f93
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_cc311f29a80d47f6a6ec373d547d5f93
Other Identifiers
ISSN
2076-3425
E-ISSN
2076-3425
DOI
10.3390/brainsci13010110
