Psychosocial burden and professional and social support in patients with hereditary transthyretin am...
Psychosocial burden and professional and social support in patients with hereditary transthyretin amyloidosis (ATTRv) and their relatives in Italy
About this item
Full title
Author / Creator
Magliano, Lorenza , Obici, Laura , Sforzini, Claudia , Mazzeo, Anna , Russo, Massimo , Cappelli, Francesco , Fenu, Silvia , Luigetti, Marco , Tagliapietra, Matteo , Gemelli, Chiara , Leonardi, Luca , Tozza, Stefano , Pradotto, Luca Guglielmo , Citarelli, Giulia , Mauro, Alessandro , Manganelli, Fiore , Antonini, Giovanni , Grandis, Marina , Fabrizi, Gian Maria , Sabatelli, Mario , Pareyson, Davide , Perfetto, Federico , Merlini, Giampaolo , Vita, Giuseppe and ATTRv Collaborators
Publisher
England: BioMed Central Ltd
Journal title
Language
English
Formats
Publication information
Publisher
England: BioMed Central Ltd
Subjects
More information
Scope and Contents
Contents
Hereditary transthyretin amyloidosis (hATTR), alias ATTR variant (ATTRv) is a severe and disabling disease causing sensory and motor neuropathy, autonomic dysfunction, and cardiomyopathy. The progressive decline of patient's functional autonomy negatively affects the patient's quality of life and requires increasing involvement of relatives in the...
Alternative Titles
Full title
Psychosocial burden and professional and social support in patients with hereditary transthyretin amyloidosis (ATTRv) and their relatives in Italy
Authors, Artists and Contributors
Author / Creator
Obici, Laura
Sforzini, Claudia
Mazzeo, Anna
Russo, Massimo
Cappelli, Francesco
Fenu, Silvia
Luigetti, Marco
Tagliapietra, Matteo
Gemelli, Chiara
Leonardi, Luca
Tozza, Stefano
Pradotto, Luca Guglielmo
Citarelli, Giulia
Mauro, Alessandro
Manganelli, Fiore
Antonini, Giovanni
Grandis, Marina
Fabrizi, Gian Maria
Sabatelli, Mario
Pareyson, Davide
Perfetto, Federico
Merlini, Giampaolo
Vita, Giuseppe
ATTRv Collaborators
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_ec614e801b3a4556b8a4dca986e3adab
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_ec614e801b3a4556b8a4dca986e3adab
Other Identifiers
ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-021-01812-6
