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The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in a...

The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in a...

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_f3a6de04641e49dab40da6624d10181e

The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

About this item

Full title

The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

Publisher

England: BioMed Central Ltd

Journal title

Orphanet journal of rare diseases, 2022-01, Vol.17 (1), p.11-11, Article 11

Language

English

Formats

Publication information

Publisher

England: BioMed Central Ltd

More information

Scope and Contents

Contents

The "Primary Immunodeficiencies (PIDs) principles of care" were published in 2014 as the gold standard for care of patients with PIDs, setting a common goal for stakeholders to ensure that patients with PID have access to appropriate care and good quality of life. Since then, IPOPI (the International Patient Organisation for Primary Immunodeficienc...

Alternative Titles

Full title

The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_doaj_primary_oai_doaj_org_article_f3a6de04641e49dab40da6624d10181e

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_f3a6de04641e49dab40da6624d10181e

Other Identifiers

ISSN

1750-1172

E-ISSN

1750-1172

DOI

10.1186/s13023-021-02161-0

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