The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopa...
The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopathic pulmonary fibrosis
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Author / Creator
Guenther, Andreas , Krauss, Ekaterina , Tello, Silke , Wagner, Jasmin , Paul, Bettina , Kuhn, Stefan , Maurer, Olga , Heinemann, Sabine , Costabel, Ulrich , Barbero, María Asunción Nieto , Müller, Veronika , Bonniaud, Philippe , Vancheri, Carlo , Wells, Athol , Vasakova, Martina , Pesci, Alberto , Sofia, Matteo , Klepetko, Walter , Seeger, Werner , Drakopanagiotakis, Fotios and Crestani, Bruno
Publisher
England: BioMed Central Ltd
Journal title
Language
English
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Publication information
Publisher
England: BioMed Central Ltd
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More information
Scope and Contents
Contents
Since 2009, IPF patients across Europe are recruited into the eurIPFreg, providing epidemiological data and biomaterials for translational research.
The registry data are based on patient and physician baseline and follow-up questionnaires, comprising 1700 parameters. The mid- to long-term objectives of the registry are to provide clues for a be...
Alternative Titles
Full title
The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopathic pulmonary fibrosis
Authors, Artists and Contributors
Author / Creator
Krauss, Ekaterina
Tello, Silke
Wagner, Jasmin
Paul, Bettina
Kuhn, Stefan
Maurer, Olga
Heinemann, Sabine
Costabel, Ulrich
Barbero, María Asunción Nieto
Müller, Veronika
Bonniaud, Philippe
Vancheri, Carlo
Wells, Athol
Vasakova, Martina
Pesci, Alberto
Sofia, Matteo
Klepetko, Walter
Seeger, Werner
Drakopanagiotakis, Fotios
Crestani, Bruno
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Primary Identifiers
Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_fd881de11e4b4df48f8920e0300262e4
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_fd881de11e4b4df48f8920e0300262e4
Other Identifiers
ISSN
1465-993X,1465-9921
E-ISSN
1465-993X,1465-9921
DOI
10.1186/s12931-018-0845-5