Adherence to cysteamine in nephropathic cystinosis: A unique electronic monitoring experience for a...
Adherence to cysteamine in nephropathic cystinosis: A unique electronic monitoring experience for a better understanding. A prospective cohort study: CrYSTobs
About this item
Full title
Author / Creator
Gaillard, Segolene , Roche, Laurent , Lemoine, Sandrine , Deschênes, Georges , Morin, Denis , Vianey-Saban, Christine , Acquaviva-Bourdain, Cécile , Ranchin, Bruno , Bacchetta, Justine , Kassai, Behrouz , Nony, Patrice , Bodénan, Eurielle , Laudy, Valérie , Rouges, Cécile , Zarrabian, Setareh , Subtil, Fabien , Mercier, Catherine , Cochat, Pierre and Bertholet-Thomas, Aurélia
Publisher
Berlin/Heidelberg: Springer Berlin Heidelberg
Journal title
Language
English
Formats
Publication information
Publisher
Berlin/Heidelberg: Springer Berlin Heidelberg
Subjects
More information
Scope and Contents
Contents
Introduction
In nephropathic cystinosis (NC), adherence to cysteamine remains challenging; poor adherence is worsening the disease progression with a decline of kidney function and increase of extrarenal morbidities. Our objective was to describe adherence to cysteamine in NC patients, using electronic monitoring systems.
Methods
Patients...
Alternative Titles
Full title
Adherence to cysteamine in nephropathic cystinosis: A unique electronic monitoring experience for a better understanding. A prospective cohort study: CrYSTobs
Authors, Artists and Contributors
Author / Creator
Roche, Laurent
Lemoine, Sandrine
Deschênes, Georges
Morin, Denis
Vianey-Saban, Christine
Acquaviva-Bourdain, Cécile
Ranchin, Bruno
Bacchetta, Justine
Kassai, Behrouz
Nony, Patrice
Bodénan, Eurielle
Laudy, Valérie
Rouges, Cécile
Zarrabian, Setareh
Subtil, Fabien
Mercier, Catherine
Cochat, Pierre
Bertholet-Thomas, Aurélia
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_hal_primary_oai_HAL_inserm_03282698v1
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_hal_primary_oai_HAL_inserm_03282698v1
Other Identifiers
ISSN
0931-041X
E-ISSN
1432-198X
DOI
10.1007/s00467-020-04722-0
