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Parents’ experiences of decision making for rapid genomic sequencing in intensive care

Parents’ experiences of decision making for rapid genomic sequencing in intensive care

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_journals_2604656365

Parents’ experiences of decision making for rapid genomic sequencing in intensive care

About this item

Full title

Parents’ experiences of decision making for rapid genomic sequencing in intensive care

Publisher

England: Nature Publishing Group

Journal title

European journal of human genetics : EJHG, 2021-12, Vol.29 (12), p.1804-1810

Language

English

Formats

Publication information

Publisher

England: Nature Publishing Group

More information

Scope and Contents

Contents

The clinical utility of rapid genomic sequencing (rGS) for critically unwell infants and children has been well demonstrated. Parental capacity for informed consent has been questioned, yet limited empirical data exists to guide clinical service delivery. In an Australian nationwide clinical implementation project offering rGS for critically unwell...

Alternative Titles

Full title

Parents’ experiences of decision making for rapid genomic sequencing in intensive care

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_proquest_journals_2604656365

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_journals_2604656365

Other Identifiers

ISSN

1018-4813,1476-5438

E-ISSN

1476-5438

DOI

10.1038/s41431-021-00950-6

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