P84 ‘I am not fixed;’ A qualitative study exploring the views about respiratory care of people born...
P84 ‘I am not fixed;’ A qualitative study exploring the views about respiratory care of people born with OA/TOF
About this item
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Author / Creator
Bray, L , Gray, V , Cullis, P , Gorst, S , Faulkner, J and Thursfield, RM
Publisher
London: BMJ Publishing Group Ltd and British Thoracic Society
Journal title
Language
English
Formats
Publication information
Publisher
London: BMJ Publishing Group Ltd and British Thoracic Society
Subjects
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Scope and Contents
Contents
Introduction and ObjectivesApproximately 1 in every 4100 people worldwide are born with oesophageal atresia ± tracheo-oesophageal fistula (OA/TOF). Whilst surgical correction is, in most cases, performed within the early years, physiological dysfunction remains. The care of this group of people is disparate with no clear guidance or referral pathways outside of surgical management. With reflux and aspiration being commonly seen, respiratory symptoms are frequently encountered and often misdiagnosed. This qualitative study embedded within the ocelot study (https://tofs.org.uk/ocelot-study/), which seeks to determine a core outcome set for this patient population, explored the experiences of adults and children of living with OA/TOF.MethodsFive focus groups and five individual interviews were conducted via video conferencing software. The groups were facilitated by clinicians, researchers and Tracheo-Oesophageal Fistula Support (...
Alternative Titles
Full title
P84 ‘I am not fixed;’ A qualitative study exploring the views about respiratory care of people born with OA/TOF
Authors, Artists and Contributors
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Primary Identifiers
Record Identifier
TN_cdi_proquest_journals_2735649831
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_journals_2735649831
Other Identifiers
ISSN
0040-6376
E-ISSN
1468-3296
DOI
10.1136/thorax-2022-BTSabstracts.220
