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Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_journals_3149645030

Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

About this item

Full title

Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

Publisher

Mumbai: Springer Nature B.V

Journal title

The Egyptian journal of neurology, psychiatry and neurosurgery, 2024-12, Vol.60 (1), p.153

Language

English

Formats

Publication information

Publisher

Mumbai: Springer Nature B.V

Subjects

More information

Scope and Contents

Contents

BackgroundThe Pediatric Spinal Muscular Atrophy Registry Program of Iran (PSMAIR) was established as part of the global TREAT-NMD network, which collects data from spinal muscular atrophy (SMA) patients under 18 years of age in Iran. The registry employs a web-based data entry system to collect detailed longitudinal demographic, geographic, clinica...

Alternative Titles

Full title

Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_proquest_journals_3149645030

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_journals_3149645030

Other Identifiers

ISSN

1110-1083

E-ISSN

1687-8329

DOI

10.1186/s41983-024-00921-w

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