Improving access to medicines: empowering patients in the quest to improve treatment for rare lethal...
Improving access to medicines: empowering patients in the quest to improve treatment for rare lethal diseases
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Publisher
England: Institute of Medical Ethics and BMJ Publishing Group Ltd
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Language
English
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Publisher
England: Institute of Medical Ethics and BMJ Publishing Group Ltd
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Contents
A patient's perspective In 2011 Les Halpin was diagnosed with motor neuron disease (MND), also known as amyotrophic lateral sclerosis (ALS). Since his diagnosis, Les has been committed to accelerating the development, approval and licensing of novel therapies for people with life threatening illnesses. In this regard, the recent use of the website 'Patients Like Me' ( http://www.patientslikeme.com/ ) by patients with MND on lithium treatment to 'self-report' their own disease progress was a landmark event. 1 2 The medical profession should embrace this change and harness the additional power provided by access to greater numbers of patients around the world....
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Full title
Improving access to medicines: empowering patients in the quest to improve treatment for rare lethal diseases
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TN_cdi_proquest_miscellaneous_1737481024
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_miscellaneous_1737481024
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ISSN
0306-6800
E-ISSN
1473-4257
DOI
10.1136/medethics-2013-101427
