Cross-cultural selection and validation of instruments to assess patient-reported outcomes in childr...
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
About this item
Full title
Author / Creator
Bloemeke, Janika , Sommer, Rachel , Witt, Stefanie , Bullinger, Monika , Nordon, Clementine , Badia, Francisco Javier , González, Felipe Luna , Leiva-Gea, Antonio , de Borja Delgado Rufino, Francisco , Mayoral-Cleries, Fermín , Romero-Sanchiz, Pablo , Saiz, Verónica Clamagirand , Nogueira-Arjona, Raquel , Mohnike, Klaus and Quitmann, Julia
Publisher
Cham: Springer Science + Business Media
Journal title
Language
English
Formats
Publication information
Publisher
Cham: Springer Science + Business Media
Subjects
More information
Scope and Contents
Contents
Purpose
Achondroplasia, as the most common form of disproportionate short stature, potentially impacts the health-related quality of life (HRQOL) and functioning of people with this condition. Because there are no psychometrically validated patient-reported outcome (PRO) condition-specific instruments for achondroplasia, this study selected and...
Alternative Titles
Full title
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
Authors, Artists and Contributors
Author / Creator
Sommer, Rachel
Witt, Stefanie
Bullinger, Monika
Nordon, Clementine
Badia, Francisco Javier
González, Felipe Luna
Leiva-Gea, Antonio
de Borja Delgado Rufino, Francisco
Mayoral-Cleries, Fermín
Romero-Sanchiz, Pablo
Saiz, Verónica Clamagirand
Nogueira-Arjona, Raquel
Mohnike, Klaus
Quitmann, Julia
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_proquest_miscellaneous_2232035155
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_miscellaneous_2232035155
Other Identifiers
ISSN
0962-9343
E-ISSN
1573-2649
DOI
10.1007/s11136-019-02210-z
