Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
About this item
Full title
Author / Creator
Siddiq, Shabnaz , Wilson, Brenda J. , Graham, Ian D. , Lamoureux, Monica , Khangura, Sara D. , Tingley, Kylie , Tessier, Laure , Chakraborty, Pranesh , Coyle, Doug , Dyack, Sarah , Gillis, Jane , Greenberg, Cheryl , Hayeems, Robin Z. , Jain-Ghai, Shailly , Kronick, Jonathan B. , Laberge, Anne-Marie , Little, Julian , Mitchell, John J. , Prasad, Chitra , Siriwardena, Komudi , Sparkes, Rebecca , Speechley, Kathy N. , Stockler, Sylvia , Trakadis, Yannis , Wafa, Sarah , Walia, Jagdeep , Wilson, Kumanan , Yuskiv, Nataliya , Potter, Beth K. , on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN) and Canadian Inherited Metabolic Diseases Research Network (CIMDRN)
Publisher
England: BioMed Central Ltd
Journal title
Language
English
Formats
Publication information
Publisher
England: BioMed Central Ltd
Subjects
More information
Scope and Contents
Contents
We sought to understand the experiences of parents/caregivers of children with inherited metabolic diseases (IMD) in order to inform strategies for supporting patients and their families. We investigated their experiences regarding the management of disease, its impact on child and family life, and interactions with the health care system.
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Alternative Titles
Full title
Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
Authors, Artists and Contributors
Author / Creator
Wilson, Brenda J.
Graham, Ian D.
Lamoureux, Monica
Khangura, Sara D.
Tingley, Kylie
Tessier, Laure
Chakraborty, Pranesh
Coyle, Doug
Dyack, Sarah
Gillis, Jane
Greenberg, Cheryl
Hayeems, Robin Z.
Jain-Ghai, Shailly
Kronick, Jonathan B.
Laberge, Anne-Marie
Little, Julian
Mitchell, John J.
Prasad, Chitra
Siriwardena, Komudi
Sparkes, Rebecca
Speechley, Kathy N.
Stockler, Sylvia
Trakadis, Yannis
Wafa, Sarah
Walia, Jagdeep
Wilson, Kumanan
Yuskiv, Nataliya
Potter, Beth K.
on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN)
Canadian Inherited Metabolic Diseases Research Network (CIMDRN)
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_5142351
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_5142351
Other Identifiers
ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-016-0548-2
