Parents’ Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the...
Parents’ Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands
About this item
Full title
Author / Creator
Blom, Maartje , Bredius, Robbert G. M. , Jansen, Marleen E. , Weijman, Gert , Kemper, Evelien A. , Vermont, Clementien L. , Hollink, Iris H. I. M. , Dik, Willem A. , van Montfrans, Joris M. , van Gijn, Mariëlle E. , Henriet, Stefanie S. , van Aerde, Koen J. , Koole, Wouter , Lankester, Arjan C. , Dekkers, Eugènie H. B. M. , Schielen, Peter C. J. I. , de Vries, Martine C. , Henneman, Lidewij , van der Burg, Mirjam , SONNET-Study Group and on behalf of the SONNET-Study Group
Publisher
New York: Springer US
Journal title
Language
English
Formats
Publication information
Publisher
New York: Springer US
Subjects
More information
Scope and Contents
Contents
Purpose
While neonatal bloodspot screening (NBS) for severe combined immunodeficiency (SCID) has been introduced more than a decade ago, implementation in NBS programs remains challenging in many countries. Even if high-quality test methods and follow-up care are available, public uptake and parental acceptance are not guaranteed. The aim of thi...
Alternative Titles
Full title
Parents’ Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands
Authors, Artists and Contributors
Author / Creator
Bredius, Robbert G. M.
Jansen, Marleen E.
Weijman, Gert
Kemper, Evelien A.
Vermont, Clementien L.
Hollink, Iris H. I. M.
Dik, Willem A.
van Montfrans, Joris M.
van Gijn, Mariëlle E.
Henriet, Stefanie S.
van Aerde, Koen J.
Koole, Wouter
Lankester, Arjan C.
Dekkers, Eugènie H. B. M.
Schielen, Peter C. J. I.
de Vries, Martine C.
Henneman, Lidewij
van der Burg, Mirjam
SONNET-Study Group
on behalf of the SONNET-Study Group
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7846522
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7846522
Other Identifiers
ISSN
0271-9142
E-ISSN
1573-2592
DOI
10.1007/s10875-020-00886-4
