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Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_9734861

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

About this item

Full title

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

Publisher

England: Nature Publishing Group

Journal title

European journal of human genetics : EJHG, 2023-02, Vol.31 (2), p.142-147

Language

English

Formats

Publication information

Publisher

England: Nature Publishing Group

More information

Scope and Contents

Contents

This article reports on the findings of an international workshop organised by the UK-France Genomics and Ethics Network (UK-FR GENE) in 2021. They focus specifically on how collection, storage and sharing of genomic data may pose challenges to established principles and values such as trust, confidentiality, and privacy in countries that have impl...

Alternative Titles

Full title

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_9734861

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_9734861

Other Identifiers

ISSN

1018-4813,1476-5438

E-ISSN

1476-5438

DOI

10.1038/s41431-022-01247-y

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