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Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Ri...

Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Ri...

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_swepub_primary_oai_swepub_ki_se_485014

Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes

About this item

Full title

Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes

Publisher

Dordrecht: Springer Netherlands

Journal title

Familial cancer, 2019-04, Vol.18 (2), p.281-284

Language

English

Formats

Publication information

Publisher

Dordrecht: Springer Netherlands

More information

Scope and Contents

Contents

Approximately 27–36 million patients in Europe have one of the ~ 5.000–8.000 known rare diseases. These patients often do not receive the care they need or they have a substantial delay from diagnosis to treatment. In March 2017, twenty-four European Reference Networks (ERNs) were launched with the aim to improve the care for these patients through...

Alternative Titles

Full title

Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_swepub_primary_oai_swepub_ki_se_485014

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_swepub_primary_oai_swepub_ki_se_485014

Other Identifiers

ISSN

1389-9600,1573-7292

E-ISSN

1573-7292

DOI

10.1007/s10689-018-0110-6

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