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ArticlesPeer ReviewedFull Text
Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals
Author / Creator:van Eenennaam, Remko M ; Rave, Neele ; Kruithof, Willeke J ; Kruitwagen-van Reenen, Esther T ; van den Berg, Leonard H ; Visser-Meily, Johanna A ; Beelen, Anita
Publisher:San Francisco: Public Library of Science
Journal title:PloS one, 2023-09, Vol.18 (9), p.e0290508-e0290508
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A Road Map for Remote Digital Health Technology for Motor Neuron Disease
Author / Creator:van Eijk, Ruben P A ; Beelen, Anita ; Kruitwagen, Esther T ; Murray, Deirdre ; Radakovic, Ratko ; Hobson, Esther ; Knox, Liam ; Helleman, Jochem ; Burke, Tom ; Rubio Pérez, Miguel Ángel ; Reviers, Evy ; Genge, Angela ; Steyn, Frederik J ; Ngo, Shyuan ; Eaglesham, John ; Roes, Kit C B ; van den Berg, Leonard H ; Hardiman, Orla ; McDermott, Christopher J
Publisher:Toronto: Gunther Eysenbach MD MPH, Associate Professor
Journal title:Journal of medical Internet research, 2021-09, Vol.23 (9), p.e28766-e28766
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Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study
Author / Creator:Warnink-Kavelaars, Jessica ; Beelen, Anita ; Dekker, Sarah ; Nollet, Frans ; Menke, Leonie A ; Engelbert, Raoul H H
Publisher:England: BioMed Central Ltd
Journal title:BMC pediatrics, 2019-07, Vol.19 (1), p.262-262, Article 262
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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide
Author / Creator:van Eenennaam, Remko M ; Kruithof, Willeke J ; van Es, Michael A ; Kruitwagen-van Reenen, Esther T ; Westeneng, Henk-Jan ; Visser-Meily, Johanna M A ; van den Berg, Leonard H ; Beelen, Anita
Publisher:England: BioMed Central Ltd
Journal title:BMC neurology, 2020-12, Vol.20 (1), p.446-446, Article 446
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Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties
Author / Creator:Conroy, Éilís ; Kennedy, Polly ; Heverin, Mark ; Leroi, Iracema ; Mayberry, Emily ; Beelen, Anita ; Stavroulakis, Theocharis ; van den Berg, Leonard H. ; McDermott, Christopher J. ; Hardiman, Orla ; Galvin, Miriam
Publisher:Basel: MDPI AG
Journal title:Brain sciences, 2021-08, Vol.11 (8), p.1094
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Correction: Aerobic Exercise Training in Post-Polio Syndrome: Process Evaluation of a Randomized Controlled Trial
Author / Creator:Voorn, Eric L ; Koopman, Fieke S ; Brehm, Merel A ; Beelen, Anita ; de Haan, Arnold ; Gerrits, Karin H L ; Nollet, Frans
Publisher:United States: Public Library of Science
Journal title:PloS one, 2018-01, Vol.13 (1), p.e0192338-e0192338
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ArticlesPeer ReviewedFull Text
Aerobic Exercise Training in Post-Polio Syndrome: Process Evaluation of a Randomized Controlled Trial
Author / Creator:Voorn, Eric L ; Koopman, Fieke S ; Brehm, Merel A ; Beelen, Anita ; de Haan, Arnold ; Gerrits, Karin H L ; Nollet, Frans
Publisher:United States: Public Library of Science
Journal title:PloS one, 2016-07, Vol.11 (7), p.e0159280-e0159280
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Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs
Author / Creator:Sommers-Spijkerman, Marion ; Rave, Neele ; Kruitwagen-van Reenen, Esther ; Visser-Meily, Johanna M A ; Kavanaugh, Melinda S ; Beelen, Anita
Publisher:England: BioMed Central Ltd
Journal title:BMC Psychology, 2022-03, Vol.10 (1), p.72-72, Article 72
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Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study
Author / Creator:van Eenennaam, Remko M ; Koppenol, Loulou S ; Kruithof, Willeke J ; Kruitwagen-van Reenen, Esther T ; Pieters, Sotice ; van Es, Michael A ; van den Berg, Leonard H ; Visser-Meily, Johanna M A ; Beelen, Anita
Publisher:Switzerland: MDPI AG
Journal title:Brain sciences, 2021-11, Vol.11 (12), p.1597
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User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study
Author / Creator:de Wit, Jessica ; Vervoort, Sigrid C J M ; van Eerden, Eefke ; van den Berg, Leonard H ; Visser-Meily, Johanna M A ; Beelen, Anita ; Schröder, Carin D
Publisher:England: BioMed Central Ltd
Journal title:BMC Psychology, 2019-06, Vol.7 (1), p.35-35, Article 35
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ArticlesPeer ReviewedFull Text
Gait training assisted by multi-channel functional electrical stimulation early after stroke: study protocol for a randomized controlled trial
Author / Creator:van Bloemendaal, Maijke ; Bus, Sicco A ; de Boer, Charlotte E ; Nollet, Frans ; Geurts, Alexander C H ; Beelen, Anita
Publisher:England: BioMed Central Ltd
Journal title:Current controlled trials in cardiovascular medicine, 2016-10, Vol.17 (1), p.477-477, Article 477
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ArticlesPeer ReviewedFull Text
Reliability of contractile properties of the knee extensor muscles in individuals with post-polio syndrome
Author / Creator:Voorn, Eric L ; Brehm, Merel A ; Beelen, Anita ; de Haan, Arnold ; Nollet, Frans ; Gerrits, Karin H L
Publisher:United States: Public Library of Science
Journal title:PloS one, 2014-07, Vol.9 (7), p.e101660-e101660
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ArticlesPeer ReviewedFull Text
Impaired Visual Integration in Children with Traumatic Brain Injury: An Observational Study
Author / Creator:Königs, Marsh ; Weeda, Wouter D ; van Heurn, L W Ernest ; Vermeulen, R Jeroen ; Goslings, J Carel ; Luitse, Jan S K ; Poll-Thé, Bwee Tien ; Beelen, Anita ; van der Wees, Marleen ; Kemps, Rachèl J J K ; Catsman-Berrevoets, Coriene E ; Oosterlaan, Jaap
Publisher:United States: Public Library of Science
Journal title:PloS one, 2015-12, Vol.10 (12), p.e0144395-e0144395
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ArticlesPeer ReviewedFull Text
A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial
Author / Creator:de Wit, Jessica ; Beelen, Anita ; Drossaert, Constance H C ; Kolijn, Ruud ; van den Berg, Leonard H ; Visser-Meily, Johanna M A ; Schröder, Carin D
Publisher:England: BioMed Central Ltd
Journal title:BMC Psychology, 2018-05, Vol.6 (1), p.20-20, Article 20
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Exercise therapy and cognitive behavioural therapy to improve fatigue, daily activity performance and quality of life in postpoliomyelitis syndrome: the protocol of the FACTS-2-PPS trial
Author / Creator:Koopman, Fieke S ; Beelen, Anita ; Gerrits, Karin H ; Bleijenberg, Gijs ; Abma, Tineke A ; de Visser, Marianne ; Nollet, Frans
Publisher:England: BioMed Central Ltd
Journal title:BMC neurology, 2010-01, Vol.10 (1), p.8-8, Article 8
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Prognostic factors for the course of functional status of patients with ALS: a systematic review
Author / Creator:Creemers, Huub ; Grupstra, Hepke ; Nollet, Frans ; van den Berg, Leonard H. ; Beelen, Anita
Publisher:Berlin/Heidelberg: Springer Berlin Heidelberg
Journal title:Journal of neurology, 2015-06, Vol.262 (6), p.1407-1423
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Factors related to caregiver strain in ALS: a longitudinal study
Author / Creator:Creemers, Huub ; de Morée, Sandra ; Veldink, Jan H ; Nollet, Frans ; van den Berg, Leonard H ; Beelen, Anita
Publisher:England: BMJ Publishing Group LTD
Journal title:Journal of neurology, neurosurgery and psychiatry, 2016-07, Vol.87 (7), p.775-781
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Multidisciplinary end-of-life care for a patient with amyotrophic lateral sclerosis requesting euthanasia
Author / Creator:Kruithof, Willeke J ; Kruitwagen-van Reenen, Esther ; van Eenennaam, Remko M ; Ronda, Maaike C M ; Lamers, Marjon J ; Visser-Meily, Johanna M A ; Beelen, Anita ; van den Berg, Leonard H
Publisher:England: Elsevier Ltd
Journal title:The Lancet (British edition), 2023-08, Vol.402 (10400), p.484-484
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Home-monitoring of vital capacity in people with a motor neuron disease
Author / Creator:Helleman, Jochem ; Bakers, Jaap N. E. ; Pirard, Evelien ; van den Berg, Leonard H. ; Visser-Meily, Johanna M. A. ; Beelen, Anita
Publisher:Berlin/Heidelberg: Springer Berlin Heidelberg
Journal title:Journal of neurology, 2022-07, Vol.269 (7), p.3713-3722
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Frequency of euthanasia, factors associated with end-of-life practices, and quality of end-of-life care in patients with amyotrophic lateral sclerosis in the Netherlands: a population-based cohort stu...
Author / Creator:van Eenennaam, Remko M ; Kruithof, Willeke ; Beelen, Anita ; Bakker, Leonhard A ; van Eijk, Ruben P A ; Maessen, Maud ; Baardman, Joost F ; Visser-Meily, Johanna M A ; Veldink, Jan H ; van den Berg, Leonard H
Publisher:England: Elsevier Ltd
Journal title:Lancet neurology, 2023-07, Vol.22 (7), p.591-601
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Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals

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A Road Map for Remote Digital Health Technology for Motor Neuron Disease

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Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study

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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

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Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties

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Correction: Aerobic Exercise Training in Post-Polio Syndrome: Process Evaluation of a Randomized Controlled Trial

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Aerobic Exercise Training in Post-Polio Syndrome: Process Evaluation of a Randomized Controlled Trial

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Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs

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Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

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User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study

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Gait training assisted by multi-channel functional electrical stimulation early after stroke: study protocol for a randomized controlled trial

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Reliability of contractile properties of the knee extensor muscles in individuals with post-polio syndrome

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Impaired Visual Integration in Children with Traumatic Brain Injury: An Observational Study

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A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial

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Exercise therapy and cognitive behavioural therapy to improve fatigue, daily activity performance and quality of life in postpoliomyelitis syndrome: the protocol of the FACTS-2-PPS trial

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Prognostic factors for the course of functional status of patients with ALS: a systematic review

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Factors related to caregiver strain in ALS: a longitudinal study

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Multidisciplinary end-of-life care for a patient with amyotrophic lateral sclerosis requesting euthanasia

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Home-monitoring of vital capacity in people with a motor neuron disease

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Frequency of euthanasia, factors associated with end-of-life practices, and quality of end-of-life care in patients with amyotrophic lateral sclerosis in the Netherlands: a population-based cohort stu...

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