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ArticlesPeer ReviewedFull Text
How to address the challenges of evaluating treatment benefits-risks in rare diseases? A convergent mixed methods approach applied within a Merkel cell carcinoma phase 2 clinical trial
Author / Creator:Bharmal, Murtuza ; Guillemin, Isabelle ; Marrel, Alexia ; Arnould, Benoit ; Lambert, Jérémy ; Hennessy, Meliessa ; Fofana, Fatoumata
Publisher:England: BioMed Central Ltd
Journal title:Orphanet journal of rare diseases, 2018-06, Vol.13 (1), p.95-95, Article 95
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SAGIT®: clinician-reported outcome instrument for managing acromegaly in clinical practice—development and results from a pilot study
Author / Creator:Giustina, Andrea ; Bevan, John S. ; Bronstein, Marcello D. ; Casanueva, Felipe F. ; Chanson, Philippe ; Petersenn, Stephan ; Thanh, Xuan-Mai Truong ; Sert, Caroline ; Houchard, Aude ; Guillemin, Isabelle ; Melmed, Shlomo
Publisher:New York: Springer US
Journal title:Pituitary, 2016-02, Vol.19 (1), p.39-49
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Responder Threshold for Patient-Oriented Eczema Measure (POEM) and Children’s Dermatology Life Quality Index (CDLQI) in Adolescents with Atopic Dermatitis
Author / Creator:Simpson, Eric L. ; de Bruin-Weller, Marjolein ; Eckert, Laurent ; Whalley, Diane ; Guillemin, Isabelle ; Reaney, Matthew ; Chen, Zhen ; Nelson, Lauren ; Qin, Shanshan ; Bansal, Ashish ; Gadkari, Abhijit
Publisher:Cheshire: Springer Healthcare
Journal title:Dermatology and therapy, 2019-12, Vol.9 (4), p.799-805
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Evaluation of the reliability and validity of the Medical Outcomes Study sleep scale in patients with painful diabetic peripheral neuropathy during an international clinical trial
Author / Creator:Viala-Danten, Muriel ; Martin, Susan ; Guillemin, Isabelle ; Hays, Ron D
Publisher:England: BioMed Central Ltd
Journal title:Health and quality of life outcomes, 2008-12, Vol.6 (1), p.113-113
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Experience of Daily Life with Generalized Myasthenia Gravis: A Qualitative Investigation and Assessment of Instrument Content Validity
Author / Creator:Hartford, Christopher A. ; Sherman, Steven A. ; Karantzoulis, Stella ; Guillemin, Isabelle ; Phinney, Michael G. ; Kelly, Kimberly L. ; Negron, Kayla E. ; Raja, Shruti M. ; Rofail, Diana
Publisher:Cheshire: Springer Healthcare
Journal title:Neurology and therapy, 2023-12, Vol.12 (6), p.2079-2099
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Reappraisal of Vipera aspis venom neurotoxicity
Author / Creator:Ferquel, Elisabeth ; de Haro, Luc ; Jan, Virginie ; Guillemin, Isabelle ; Jourdain, Sabine ; Teynié, Alexandre ; d'Alayer, Jacques ; Choumet, Valérie
Publisher:United States: Public Library of Science
Journal title:PloS one, 2007-11, Vol.2 (11), p.e1194
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Studying the Hurdles of Insulin Prescription (SHIP): development, scoring and initial validation of a new self-administered questionnaire
Author / Creator:Martinez, Luc ; Consoli, Silla M ; Monnier, Louis ; Simon, Dominique ; Wong, Olivier ; Yomtov, Bernard ; Guéron, Béatrice ; Benmedjahed, Khadra ; Guillemin, Isabelle ; Arnould, Benoit
Publisher:England: BioMed Central Ltd
Journal title:Health and quality of life outcomes, 2007-08, Vol.5 (1), p.53-53, Article 53
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Development of the conceptual framework for the Eye-Drop Satisfaction Questionnaire (EDSQ) in glaucoma using a qualitative study
Author / Creator:Nordmann, Jean-Philippe ; Denis, Philippe ; Vigneux, Marc ; Trudeau, Elyse ; Guillemin, Isabelle ; Berdeaux, Gilles
Publisher:England: BioMed Central Ltd
Journal title:BMC health services research, 2007-08, Vol.7 (1), p.124-124, Article 124
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Validation of the Atopic Dermatitis Control Tool (ADCT©) using a longitudinal survey of biologic-treated patients with atopic dermatitis
Author / Creator:Simpson, Eric ; Eckert, Laurent ; Gadkari, Abhijit ; Mallya, Usha G ; Yang, Min ; Nelson, Lauren ; Brown, Michelle ; Reaney, Matt ; Mahajan, Puneet ; Guillemin, Isabelle ; Boguniewicz, Mark ; Pariser, David
Publisher:England: BioMed Central Ltd
Journal title:BMC dermatology, 2019-11, Vol.19 (1), p.15, Article 15
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Definition of Clinically Meaningful Within-Patient Changes in POEM and CDLQI in Children 6 to 11 Years of Age with Severe Atopic Dermatitis
Author / Creator:Simpson, Eric L. ; de Bruin-Weller, Marjolein ; Bansal, Ashish ; Chen, Zhen ; Nelson, Lauren ; Whalley, Diane ; Prescilla, Randy ; Guillemin, Isabelle ; Delevry, Dimittri
Publisher:Cheshire: Springer Healthcare
Journal title:Dermatology and therapy, 2021-08, Vol.11 (4), p.1415-1422
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Development, Psychometric Validation and Responder Definition of Worst Itch Scale in Children with Severe Atopic Dermatitis
Author / Creator:Paller, Amy S. ; Yosipovitch, Gil ; Weidinger, Stephan ; DiBenedetti, Dana ; Whalley, Diane ; Gadkari, Abhijit ; Guillemin, Isabelle ; Zhang, Haixin ; Eckert, Laurent ; Chao, Jingdong ; Bansal, Ashish ; Chuang, Chien-Chia ; Delevry, Dimittri
Publisher:Cheshire: Springer Healthcare
Journal title:Dermatology and therapy, 2022-12, Vol.12 (12), p.2839-2850
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Living with Merkel Cell Carcinoma (MCC): Development of a Conceptual Model of MCC Based on Patient Experiences
Author / Creator:Kaufman, Howard L. ; Dias Barbosa, Carla ; Guillemin, Isabelle ; Lambert, Jérémy ; Mahnke, Lisa ; Bharmal, Murtuza
Publisher:Cham: Springer International Publishing
Journal title:The patient : patient-centered outcomes research, 2018-08, Vol.11 (4), p.439-449
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ArticlesPeer ReviewedFull Text
Responder Threshold for Patient-Oriented Eczema Measure in Adolescents with Atopic Dermatitis
Author / Creator:Simpson, Eric L ; de Bruin-Weller, Marjolein ; Eckert, Laurent ; Whalley, Diane ; Guillemin, Isabelle ; Reaney, Matthew ; Chen, Zhen
Publisher:Springer
Journal title:Dermatology and therapy, 2019-12, Vol.9 (4), p.799
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Improving the primary care physicians' decision making for fibromyalgia in clinical practice: development and validation of the Fibromyalgia Detection (FibroDetect®) screening tool
Author / Creator:Baron, Ralf ; Perrot, Serge ; Guillemin, Isabelle ; Alegre, Cayetano ; Dias-Barbosa, Carla ; Choy, Ernest ; Gilet, Hélène ; Cruccu, Giorgio ; Desmeules, Jules ; Margaux, Joëlle ; Richards, Selwyn ; Serra, Eric ; Spaeth, Michael ; Arnould, Benoit
Publisher:England: BioMed Central Ltd
Journal title:Health and quality of life outcomes, 2014-10, Vol.12 (1), p.128-128, Article 128
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Patients’ Experience and Perception of Hospital-Treated Clostridium difficile Infections: a Qualitative Study
Author / Creator:Guillemin, Isabelle ; Marrel, Alexia ; Lambert, Jérémy ; Beriot-Mathiot, Axelle ; Doucet, Carole ; Kazoglou, Odysseas ; Luxemburger, Christine ; Reygrobellet, Camille ; Arnould, Benoit
Publisher:Cham: Springer International Publishing
Journal title:The patient : patient-centered outcomes research, 2014-03, Vol.7 (1), p.97-105
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SAGIT super( registered ): clinician-reported outcome instrument for managing acromegaly in clinical practice-development and results from a pilot study
Author / Creator:Giustina, Andrea ; Bevan, John S ; Bronstein, Marcello D ; Casanueva, Felipe F ; Chanson, Philippe ; Petersenn, Stephan ; Thanh, Xuan-Mai Truong ; Sert, Caroline ; Houchard, Aude ; Guillemin, Isabelle ; Melmed, Shlomo
Journal title:Pituitary, 2016-02, Vol.19 (1), p.39-49
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SAGIT^sup ^: clinician-reported outcome instrument for managing acromegaly in clinical practice--development and results from a pilot study
Author / Creator:Giustina, Andrea ; Bevan, John S ; Bronstein, Marcello D ; Casanueva, Felipe F ; Chanson, Philippe ; Petersenn, Stephan ; Thanh, Xuan-mai Truong ; Sert, Caroline ; Houchard, Aude ; Guillemin, Isabelle ; Melmed, Shlomo
Publisher:New York: Springer Nature B.V
Journal title:Pituitary, 2016-01, Vol.19 (1), p.39
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Linguistic Validation into 20 Languages and Content Validity of the Rheumatoid Arthritis-Specific Work Productivity and Activity Impairment Questionnaire
Author / Creator:Lambert, Jérémy ; Hansen, Brian B. ; Arnould, Benoit ; Grataloup, Géraldine ; Guillemin, Isabelle ; Højbjerre, Lise ; Strandberg-Larsen, Martin ; Reilly, Margaret C.
Publisher:Cham: Springer International Publishing
Journal title:The patient : patient-centered outcomes research, 2014-06, Vol.7 (2), p.171-176
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Validity, reliability, and responsiveness of a new short Visual Simplified Respiratory Questionnaire (VSRQ) for health-related quality of life assessment in chronic obstructive pulmonary disease
Author / Creator:Perez, T ; Arnould, B ; Grosbois, J-M ; Bosch, V ; Guillemin, I ; Bravo, M-L ; Brun, M ; Tonnel, A-B
Publisher:New Zealand: Dove Medical Press Ltd
Journal title:International journal of chronic obstructive pulmonary disease, 2009, Vol.4 (default), p.9-18
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Perceived subject outcomes and impact on health-related quality of life associated with diet using the new Food Benefits Assessment (FBA©) questionnaire: development and psychometric validation
Author / Creator:Guyonnet, Denis ; Chassany, Olivier ; Picard, Céline ; Guillemin, Isabelle ; Meunier, Juliette ; Seignobos, Eva ; Vigneux, Marc ; Lassel, Taous ; Trudeau, Elyse
Publisher:Cambridge, UK: Cambridge University Press
Journal title:Public health nutrition, 2008-11, Vol.11 (11), p.1163-1172
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How to address the challenges of evaluating treatment benefits-risks in rare diseases? A convergent mixed methods approach applied within a Merkel cell carcinoma phase 2 clinical trial

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SAGIT®: clinician-reported outcome instrument for managing acromegaly in clinical practice—development and results from a pilot study

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Responder Threshold for Patient-Oriented Eczema Measure (POEM) and Children’s Dermatology Life Quality Index (CDLQI) in Adolescents with Atopic Dermatitis

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Evaluation of the reliability and validity of the Medical Outcomes Study sleep scale in patients with painful diabetic peripheral neuropathy during an international clinical trial

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Experience of Daily Life with Generalized Myasthenia Gravis: A Qualitative Investigation and Assessment of Instrument Content Validity

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Reappraisal of Vipera aspis venom neurotoxicity

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Studying the Hurdles of Insulin Prescription (SHIP): development, scoring and initial validation of a new self-administered questionnaire

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Development of the conceptual framework for the Eye-Drop Satisfaction Questionnaire (EDSQ) in glaucoma using a qualitative study

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Validation of the Atopic Dermatitis Control Tool (ADCT©) using a longitudinal survey of biologic-treated patients with atopic dermatitis

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Definition of Clinically Meaningful Within-Patient Changes in POEM and CDLQI in Children 6 to 11 Years of Age with Severe Atopic Dermatitis

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Development, Psychometric Validation and Responder Definition of Worst Itch Scale in Children with Severe Atopic Dermatitis

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Living with Merkel Cell Carcinoma (MCC): Development of a Conceptual Model of MCC Based on Patient Experiences

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Responder Threshold for Patient-Oriented Eczema Measure in Adolescents with Atopic Dermatitis

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Improving the primary care physicians' decision making for fibromyalgia in clinical practice: development and validation of the Fibromyalgia Detection (FibroDetect®) screening tool

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Patients’ Experience and Perception of Hospital-Treated Clostridium difficile Infections: a Qualitative Study

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SAGIT super( registered ): clinician-reported outcome instrument for managing acromegaly in clinical practice-development and results from a pilot study

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SAGIT^sup ^: clinician-reported outcome instrument for managing acromegaly in clinical practice--development and results from a pilot study

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Linguistic Validation into 20 Languages and Content Validity of the Rheumatoid Arthritis-Specific Work Productivity and Activity Impairment Questionnaire

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Validity, reliability, and responsiveness of a new short Visual Simplified Respiratory Questionnaire (VSRQ) for health-related quality of life assessment in chronic obstructive pulmonary disease

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Perceived subject outcomes and impact on health-related quality of life associated with diet using the new Food Benefits Assessment (FBA©) questionnaire: development and psychometric validation

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