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Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis
Author / Creator:Colver, Allan, Prof ; Rapp, Marion, MD ; Eisemann, Nora, Dipl Stat ; Ehlinger, Virginie, MSc ; Thyen, Ute, Prof ; Dickinson, Heather O, PhD ; Parkes, Jackie, PhD ; Parkinson, Kathryn, PhD ; Nystrand, Malin, MD ; Fauconnier, Jérôme, MD ; Marcelli, Marco, MD ; Michelsen, Susan I, PhD ; Arnaud, Catherine, Prof
Publisher:England: Elsevier Ltd
Journal title:The Lancet (British edition), 2015-02, Vol.385 (9969), p.705-716
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Early Genital Surgery in Disorders/Differences of Sex Development: Patients’ Perspectives
Author / Creator:Bennecke, Elena ; Bernstein, Stephanie ; Lee, Peter ; van de Grift, Tim C. ; Nordenskjöld, Agneta ; Rapp, Marion ; Simmonds, Margaret ; Streuli, Jürg C. ; Thyen, Ute ; Wiesemann, Claudia
Publisher:New York: Springer US
Journal title:Archives of sexual behavior, 2021-04, Vol.50 (3), p.913-923
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Pain Among Children and Adolescents: Restrictions in Daily Living and Triggering Factors
Author / Creator:Roth-Isigkeit, Angela ; Thyen, Ute ; Stoven, Hartmut ; Schwarzenberger, Johanna ; Schmucker, Peter
Publisher:United States: Am Acad Pediatrics
Journal title:Pediatrics (Evanston), 2005-02, Vol.115 (2), p.e152-e162
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Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model
Author / Creator:Markwart, Henriette ; Bomba, Franziska ; Menrath, Ingo ; Brenk-Franz, Katja ; Ernst, Gundula ; Thyen, Ute ; Hildebrandt, Andrea ; Schmidt, Silke
Publisher:United States: Public Library of Science
Journal title:PloS one, 2020-04, Vol.15 (4), p.e0230659-e0230659
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Quality of life and mental health in emerging adults with cerebral palsy compared to the general population
Author / Creator:Schmidt, Silke ; Markwart, Henriette ; Rapp, Marion ; Guyard, Audrey ; Arnaud, Catherine ; Fauconnier, Jérôme ; Thyen, Ute ; Hahm, Stefanie ; Vidart d'Egurbide Bagazgoïtia, Nicolas ; Muehlan, Holger
Publisher:England: BioMed Central Ltd
Journal title:Health and quality of life outcomes, 2022-04, Vol.20 (1), p.61-61, Article 61
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Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE)
Author / Creator:Rapp, Marion ; Mueller-Godeffroy, Esther ; Lee, Peter ; Roehle, Robert ; Kreukels, Baudewijntje P C ; Köhler, Birgit ; Nordenström, Anna ; Bouvattier, Claire ; Thyen, Ute
Publisher:England: BioMed Central
Journal title:Health and quality of life outcomes, 2018-04, Vol.16 (1), p.54-54, Article 54
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Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study
Author / Creator:Dickinson, Heather O, PhD ; Parkinson, Kathryn N, PhD ; Ravens-Sieberer, Ulrike, PhD ; Schirripa, Giorgio, MD ; Thyen, Ute, MD ; Arnaud, Catherine, MD ; Beckung, Eva, PhD ; Fauconnier, Jérôme, MD ; McManus, Vicki, BA ; Michelsen, Susan I, PhD ; Parkes, Jackie, PhD ; Colver, Allan F, Prof
Publisher:England: Elsevier Limited
Journal title:The Lancet (British edition), 2007-06, Vol.369 (9580), p.2171-2178
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Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)
Author / Creator:Thyen, Ute ; Ittermann, Till ; Flessa, Steffen ; Muehlan, Holger ; Birnbaum, Wiebke ; Rapp, Marion ; Marshall, Louise ; Szarras-Capnik, Maria ; Bouvattier, Claire ; Kreukels, Baudewijntje P C ; Nordenstroem, Anna ; Roehle, Robert ; Koehler, Birgit
Publisher:England: BioMed Central
Journal title:BMC health services research, 2018-07, Vol.18 (1), p.527-527, Article 527
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Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol
Author / Creator:Arnaud, Catherine ; Duffaut, Carine ; Fauconnier, Jérôme ; Schmidt, Silke ; Himmelmann, Kate ; Marcelli, Marco ; Pennington, Lindsay ; Alvarelhão, Joaquim ; Cytera, Chirine ; Rapp, Marion ; Ehlinger, Virginie ; Thyen, Ute
Publisher:London: BioMed Central Ltd
Journal title:BMC neurology, 2021-06, Vol.21 (1), p.1-254, Article 254
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Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population
Author / Creator:Röhle, Robert ; Gehrmann, Katharina ; Szarras-Czapnik, Maria ; Claahsen-van der Grinten, Hedi ; Pienkowski, Catherine ; Bouvattier, Claire ; Cohen-Kettenis, Peggy ; Nordenström, Anna ; Thyen, Ute ; Köhler, Birgit
Publisher:England: BioMed Central Ltd
Journal title:BMC endocrine disorders, 2017-08, Vol.17 (1), p.52-52, Article 52
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Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality
Author / Creator:Lux, Anke ; Kropf, Siegfried ; Kleinemeier, Eva ; Jürgensen, Martina ; Thyen, Ute
Publisher:England: BioMed Central Ltd
Journal title:BMC public health, 2009-04, Vol.9 (110), p.110-110, Article 110
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Employment, Child Care, and Mental Health of Mothers Caring for Children Assisted by Technology
Author / Creator:Thyen, Ute ; Kuhlthau, Karen ; Perrin, James M
Publisher:Elk Grove Village, IL: Am Acad Pediatrics
Journal title:Pediatrics (Evanston), 1999-06, Vol.103 (6), p.1235-1242
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Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy
Author / Creator:Dickinson, Heather ; Parkinson, Kathryn ; McManus, Vicki ; Arnaud, Catherine ; Beckung, Eva ; Fauconnier, Jérôme ; Michelsen, Susan I ; Parkes, Jackie ; Schirripa, Giorgio ; Thyen, Ute ; Colver, Allan
Publisher:England: BioMed Central Ltd
Journal title:BMC public health, 2006-11, Vol.6 (1), p.273-273, Article 273
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Utilization of Health Care Services and Satisfaction with Care in Adults Affected by Disorders of Sex Development (DSD)
Author / Creator:Thyen, Ute ; Lux, Anke ; Jürgensen, Martina ; Hiort, Olaf ; Köhler, Birgit
Publisher:Boston: Springer US
Journal title:Journal of general internal medicine : JGIM, 2014-08, Vol.29 (Suppl 3), p.752-759
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A Short Form of the Child/Youth Health Care Questionnaire on Satisfaction, Utilization, and Needs in Children and Adolescents with a Chronic Condition (CHC-SUN-SF/YHC-SUN-SF)
Author / Creator:Muehlan, Holger ; Markwart, Henriette ; Menrath, Ingo ; Ernst, Gundula ; Thyen, Ute ; Schmidt, Silke
Publisher:Basel: MDPI AG
Journal title:International journal of environmental research and public health, 2021-11, Vol.18 (22), p.12196
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Differential effect of a patient-education transition intervention in adolescents with IBD vs. diabetes
Author / Creator:Schmidt, Silke ; Markwart, Henriette ; Bomba, Franziska ; Muehlan, Holger ; Findeisen, Annette ; Kohl, Martina ; Menrath, Ingo ; Thyen, Ute
Publisher:Berlin/Heidelberg: Springer Berlin Heidelberg
Journal title:European journal of pediatrics, 2018-04, Vol.177 (4), p.497-505
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Epidemiology and Initial Management of Ambiguous Genitalia at Birth in Germany
Author / Creator:Thyen, Ute ; Lanz, Kathrin ; Holterhus, Paul-Martin ; Hiort, Olaf
Publisher:Basel, Switzerland: S. Karger AG
Journal title:Hormone research in paediatrics, 2006-01, Vol.66 (4), p.195-203
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The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure
Author / Creator:Schmidt, Silke ; Thyen, Ute ; Herrmann-Garitz, Carsten ; Bomba, Franziska ; Muehlan, Holger
Publisher:England: BioMed Central
Journal title:BMC health services research, 2016-05, Vol.16 (1), p.189-189, Article 189
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Predictors of self-reported health-related quality of life according to the EQ-5D-Y in chronically ill children and adolescents with asthma, diabetes, and juvenile arthritis: longitudinal results
Author / Creator:Otto, Christiane ; Barthel, Dana ; Klasen, Fionna ; Nolte, Sandra ; Rose, Matthias ; Meyrose, Ann-Katrin ; Klein, Marcus ; Thyen, Ute ; Ravens-Sieberer, Ulrike
Publisher:Cham: Springer
Journal title:Quality of life research, 2018-04, Vol.27 (4), p.879-890
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Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd)
Author / Creator:Bennecke, Elena ; Werner-Rosen, Knut ; Thyen, Ute ; Kleinemeier, Eva ; Lux, Anke ; Jürgensen, Martina ; Grüters, Annette ; Köhler, Birgit
Publisher:Berlin/Heidelberg: Springer Berlin Heidelberg
Journal title:European journal of pediatrics, 2015-10, Vol.174 (10), p.1287-1297
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Showing 1 to 20 of 46 results

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Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

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Early Genital Surgery in Disorders/Differences of Sex Development: Patients’ Perspectives

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Pain Among Children and Adolescents: Restrictions in Daily Living and Triggering Factors

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Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model

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Quality of life and mental health in emerging adults with cerebral palsy compared to the general population

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Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE)

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Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study

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Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)

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Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

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Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

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Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

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Employment, Child Care, and Mental Health of Mothers Caring for Children Assisted by Technology

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Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

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Utilization of Health Care Services and Satisfaction with Care in Adults Affected by Disorders of Sex Development (DSD)

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A Short Form of the Child/Youth Health Care Questionnaire on Satisfaction, Utilization, and Needs in Children and Adolescents with a Chronic Condition (CHC-SUN-SF/YHC-SUN-SF)

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Differential effect of a patient-education transition intervention in adolescents with IBD vs. diabetes

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Epidemiology and Initial Management of Ambiguous Genitalia at Birth in Germany

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The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure

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Predictors of self-reported health-related quality of life according to the EQ-5D-Y in chronically ill children and adolescents with asthma, diabetes, and juvenile arthritis: longitudinal results

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Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd)

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