Review of 11 national policies for rare diseases in the context of key patient needs
Review of 11 national policies for rare diseases in the context of key patient needs
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Publisher
England: BioMed Central
Journal title
Language
English
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Publisher
England: BioMed Central
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Scope and Contents
Contents
Rare diseases collectively exert a global public health burden in the severity of their manifestations and the total number of people they afflict. For many patients, considerable barriers exist in terms of access to appropriate care, delayed diagnosis and limited or non-existing treatment options. Motivated by these challenges, the rare disease pa...
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Full title
Review of 11 national policies for rare diseases in the context of key patient needs
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Record Identifier
TN_cdi_doaj_primary_oai_doaj_org_article_24a475c2dd034c20aab305746e602954
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_24a475c2dd034c20aab305746e602954
Other Identifiers
ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-017-0618-0
