To what degree are orphan drugs patient-centered? A review of the current state of clinical research...
To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases
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Publisher
London: BioMed Central Ltd
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Language
English
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London: BioMed Central Ltd
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Over the past 30 years, the healthcare industry has increasingly turned its attention to rare diseases. Regulators have emphasized the need for clinical research in this area to be patient-centered. However, there is a lack of evidence concerning whether this need is actually met. In this paper, we aim to address this gap. First, we describe the st...
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To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases
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TN_cdi_doaj_primary_oai_doaj_org_article_5394831c56394917872056e30082bb33
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https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_5394831c56394917872056e30082bb33
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ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-020-01400-0
