Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic rev...
Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic review in Cushing's syndrome
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Publisher
England: BioMed Central Ltd
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Language
English
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Publisher
England: BioMed Central Ltd
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Contents
Rare diseases are often not fully understood and efforts put in investigating it from patient perspective are usually met with challenges. We performed a systematic literature review (SLR) for the last 20 years in Cushing's Syndrome (CS) to illustrate Patient-Reported Outcome (PRO) challenges, and show what solutions were found.PROs and other Clini...
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Full title
Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic review in Cushing's syndrome
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TN_cdi_doaj_primary_oai_doaj_org_article_c3343f1f904f461789eaed9219174175
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_doaj_primary_oai_doaj_org_article_c3343f1f904f461789eaed9219174175
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ISSN
1750-1172
E-ISSN
1750-1172
DOI
10.1186/s13023-018-0958-4
