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Parents’ experience with positive newborn screening results for cystic fibrosis

Parents’ experience with positive newborn screening results for cystic fibrosis

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_miscellaneous_2190120789

Parents’ experience with positive newborn screening results for cystic fibrosis

About this item

Full title

Parents’ experience with positive newborn screening results for cystic fibrosis

Author / Creator

Publisher

Berlin/Heidelberg: Springer Berlin Heidelberg

Journal title

European journal of pediatrics, 2019-06, Vol.178 (6), p.803-809

Language

English

Formats

Publication information

Publisher

Berlin/Heidelberg: Springer Berlin Heidelberg

More information

Scope and Contents

Contents

In Germany, screening for cystic fibrosis (CF) is part of the newborn screening since September 2016. The risk of psychological harm due to false-positive screening results is a longstanding concern. We investigated the parents’ perception of the CF screening process in Bavaria and the communication after positive screening results with a questionn...

Alternative Titles

Full title

Parents’ experience with positive newborn screening results for cystic fibrosis

Authors, Artists and Contributors

Identifiers

Primary Identifiers

Record Identifier

TN_cdi_proquest_miscellaneous_2190120789

Permalink

https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_proquest_miscellaneous_2190120789

Other Identifiers

ISSN

0340-6199

E-ISSN

1432-1076

DOI

10.1007/s00431-019-03343-6

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