Lessons learned during the process of reporting individual genomic results to participants of a popu...
Lessons learned during the process of reporting individual genomic results to participants of a population-based biobank
About this item
Full title
Author / Creator
Leitsalu, Liis , Reigo, Anu , Palover, Marili , Nikopensius, Tiit , Läll, Kristi , Krebs, Kristi , Reisberg, Sulev , Mägi, Reedik , Kals, Mart , Alavere, Helene , Nõukas, Margit , Kolk, Anneli , Normet, Ivi , Tammesoo, Mari-Liis , Käärik, Ene , Puusepp, Mairo , Metsalu, Kristjan , Allik, Annely , Milani, Lili , Fischer, Krista , Tõnisson, Neeme and Metspalu, Andres
Publisher
England: Nature Publishing Group
Journal title
Language
English
Formats
Publication information
Publisher
England: Nature Publishing Group
Subjects
More information
Scope and Contents
Contents
The return of individual genomic results (ROR) to research participants is still in its early phase, and insight on how individuals respond to ROR is scarce. Studies contributing to the evidence base for best practices are crucial before these can be established. Here, we describe a ROR procedure conducted at a population-based biobank, followed by...
Alternative Titles
Full title
Lessons learned during the process of reporting individual genomic results to participants of a population-based biobank
Authors, Artists and Contributors
Author / Creator
Reigo, Anu
Palover, Marili
Nikopensius, Tiit
Läll, Kristi
Krebs, Kristi
Reisberg, Sulev
Mägi, Reedik
Kals, Mart
Alavere, Helene
Nõukas, Margit
Kolk, Anneli
Normet, Ivi
Tammesoo, Mari-Liis
Käärik, Ene
Puusepp, Mairo
Metsalu, Kristjan
Allik, Annely
Milani, Lili
Fischer, Krista
Tõnisson, Neeme
Metspalu, Andres
Identifiers
Primary Identifiers
Record Identifier
TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10474261
Permalink
https://devfeature-collection.sl.nsw.gov.au/record/TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10474261
Other Identifiers
ISSN
1018-4813,1476-5438
E-ISSN
1476-5438
DOI
10.1038/s41431-022-01196-6
